I’ve been living with IgA nephropathy for since 1990 ish
I saw a medical man today, (5th November) Professor Ian Simpson, about it. It’s been since 1998 since I’ve seen anyone, since I was discharged from the out care unit at Auckland Hospital, in factt. And so I’ve been doing this worrying about my kidneys since, and making sure I keep a regular check on them, and all that.
How did this come about, the referral all of a sudden, well that’s a tale of two things. The second thing first.
My regular doctor changed buildings recently and as part of they hoof all all paper records to the new place, and in reviewing them when I went to see him last it came as a bit of a surprise to him that I had a “condition”. So off I went with a referral.
Such a nice man, Professor Simpson, a conversational doctor, who told me by and by many things, gave me a bag of advice and a few warnings. I came away uplifted,
The kidneys, well I thought they’d been damaged by a virus thing, an upper respiratory infection, and ear ache of Brobdingnagian proportions and an sore throat is what I remember, it was long time ago 1990.
But! my kidneys are fine and dandy, everything I’ve been doing to look after them has been spot on, including the 6 monthly blood tests, and the medication.
All I have to do is lose about a gazillion kilograms and get a bit active. And he says I’ll be on the right side of the longevity thing, uplifting or what!
In an update today it appears that Auckland DHB have lost my medical records including the slides or whatever of the biopsy that I had, but not to worry the general thing still stands that I’m in fine fettle, and need to focus a bit on me.
The upshot really though is that I’ve been living with a monkey on my back for a long time, a background nagging, but it appears that although I’ve been doing the wrong thing that I might not have been doing enough of the good things. So I can relax a bit about the state of the things, and move on.

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